My Leukemia, Part 13

This can’t be right. I need to call my oncologist’s office to see what’s what…

And so, I did–with what felt like the last few drops of energy I had to spare.

No answer. (legitimate reason why explained below)

I called again.

No answer. (legitimate reason why explained below)

I left a desperate voicemail.

Didn’t hear back for three days. (legitimate reason why explained below)

I’ll spare you the hour-by-hour commentary, but I spent those three days in hell: nausea, vomiting, headache, and debilitating exhaustion. I barely drank any liquids and didn’t eat a thing.

Was THIS really the price I would have to pay to stay alive?

Could it really be that THIS is how the system works?

And try to imagine what other dark and cynical thoughts might cross someone’s mind at a time like this.

Anyway, another long painful story short, my timing for starting Calquence couldn’t have been worse. After my oncologist got back to me three days later, I learned that their entire staff was hit hard by Covid and the office was effectively shut down. Simply put, there was nobody there to help me, through no fault of their own.

Heartened to know they really did care, I wrote off my three days in hell as just one more anonymous Covid casualty.

continue… My Leukemia, Part 14

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