I was already retired and fully vested in my health insurance program when I learned I had Lynch Syndrome.
And so, I was not burdened with the ethical and legal considerations raised by two pertinent questions:
Does having the Lynch mutation count as a pre-existing condition that an insurance company would hold against you?
Does having Lynch Syndrome make an employer think twice about hiring you?
I would never dare to give specific advice regarding the ethical and legal ramifications of your privacy concerns. Instead, seek the guidance from a genetics professional who specializes in such matters.